Tuesday, February 16, 2010

ONE YEAR!!

Today is my one year anniversary for my transplant!!!!!!
There are many, many things swirling around in my head today. Even after a year I still can't quite wrap my head around this whole beautiful madness of transplant.

I have been thinking a lot about my donor's family this week. While I celebrate being alive and looking at my future, I know my donor's family is feeling the pain of this being the first year with out their daughter, sister, wife, friend, or mother. It is not that I feel guilty, even though I was so desperately hoping for new lungs, I had no actual control over who my donor would be. Still, it is a never ending psychological and philosophical chase and train of thought of how this cycle of life with in the transplant world works.
My heart goes out to them especially today. I hope knowing that her heart is still beating, that her lungs are still breathing, that her liver is still filtering, and that her body is helping so many other people, can offer some kind of comfort too them.

As y'all know this has been a rough year. Having a transplant is super intense just by itself, but then I had a handful of other unforeseen speed bumps disrupting my recovery. I am not out of the woods yet, but I venture to say that I am doing the best I have since my second operation in September. I really, really hope I can transition into a steady and strong regaining of strength from here. I am no where near where I thought I would be at the one year mark, but nothing ever goes as planned now does it? ;) I continue to push ahead, but I also can't help peeking around corners before I walk forward, making sure there is nothing else huge lurking in the shadows waiting jump out and get me. I have had the rug ripped out from under me too many times.

So, the sun is out (I am in Seattle house sitting for Ted and Rosanne) since sun this time of year is rare, I would like to think it is out and shining some for me on this special and significant day. I celebrate this evening with my friend Lisa, who is also a cystic fibrosis patient and had a double lung transplant 3 years ago. When I get home next week I will have a belated celebration in Eugene.

I have a question for you all that me and my folks have been pondering. I was transplanted last year Monday, February 16 on Presidents Day. So obviously February 16th is on a Tuesday this year, but President's Day is still on Monday, and always will be. So is my anniversary the 16th or is t President's Day? Or do I get both? Let me know what you think.
Thank you to EVERYONE who gave their love and support to us last year. We could not have done this with out our family, friends, and broad support group mad up of so many amazing people!! I have so much love for you all. Thank you.
xoxo,
emily

11 comments:

  1. EM! Congratulations to you and your new lungs. I know I can say for all of us that we are so inspired by you and your constant strength. What a celebration of life. A toast to you. I hope you get the opportunity to venture to Spain and say hello. But if not, I'll be happy to share a PRI pizza with you upon my return. Thinking of you on this special day!
    Cheers,
    Amy

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  2. EM: The "Not-Yet-Dead Poets" toasted your anniversary last night at the Villard Pub. Your dad asked for clarification on the anniversary date...We thought that both anniversary dates should be celebrated. President's day will be the date we all remember. Congratulations to you and your wonderful family. All of us can breathe easier because of you. MJ

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  3. I suggest that you take a full lifetime to celebrate. Why limit the joy to a day or two?

    Please know that all of your friends share in marking this notable achievement and we salute your courage and perserverance.

    Florida Cracker

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  4. Dear Em, Congrats on your one year anniversary! I am in awe of your strength and perseverance over this past year. You are truly an inspiration! I will congratulate you for the next 50 years on Presidents Day!!
    love you and hope to see you soon!

    Nita

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  5. Em, thank you for sharing your thoughts on this landmark date! Wow--it seems like yesterday that we were all caught up in the whirlwind of your transplant. Knowing you always reminds me to be grateful for each day, for each breath, each friend............here's a toast to you, my beautiful girl...........

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  6. Both days at the very least, take the whole month!
    Happy Anniversary with many more to come.
    Love to you, Peg and Keith.....you are my heroes!

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  7. Congrats love! A very happy aniversary to you! I hope that this next year brings you as much joy as this past year has asked for strength. Lots of love to you and your wonderful parents!!
    love,
    Emily (E2)

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  8. i guess it's 17 feb, then. congrats!! soak up that seattle sun, girl!! you're the best!

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  9. Very exciting! You are an inspiration!
    I thing you should celebrate both days! Kind of an extended holiday!!
    Love you mucho!

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  10. I've been thinking about you all week! Happy Anniversary lovely lady. Hope to see you soon.

    xoxo
    Holly Johnson

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  11. You can get whatever celebratory days you want, my love! Miss you lots, will get to see you for a few weeks end-July/beg-Aug when I come home for a visit. Can't wait for burger and brew!

    I miss you lots, love you more, thinking about you all the time :)

    Will send a longer email soon!!
    xxBrooke

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