I had a CT scan on friday, and on monday morning I have another bronchoscopy and PFT's, so we will have to see what those results say, and then get the verdict about going home. Our lease runs out on the 22nd, so I hope we get to leave so we don't have to scramble to find another place to live. Also, I am just REALLY ready to go home. There is something quite strange about waking up one morning, frantically leaving your house, catching a plane, having massive surgery in another city, having somebody else's organs put into you, and then not being allowed to go home for three months. Very strange.
Today Keith and I went on a Sea Plane tour, that was awesome. It is also sunny and gorgeous, and actually warm today! A good three month anniversary.
Happy Anniversary!! I hope it's just a bug and they let you go home. You made a very good point, if they can't do anything for you why can't you go home?
ReplyDeleteHow often will you have to see these doc's once you are home? Sounds like you might be traveling alot.
Are you feeling okay other than the cold? Is your fatigue waining?
It's great to hear from you...looking forward to more pictures.
Hi Peg and Keith!!
love ya,
Nita
Three months! In some ways it feels as if you've all been there forever. On the other hand it's like it was just yesterday you got the call. I'm keeping everything crossed that I can still manage to cross that the news is good and you're on your way home soon. Eugene just isn't the same without the Monfort family! Take good care of yourself and you'll be coming down the freeway soon. Love to all, Sandy
ReplyDeleteThere is no place like home, and I'm sure you all are ready to get there. But hang on, listen to the Doctors and you will be home before you know it. We think about you constantly and you are always the main topic at our Thursday pizza nights
ReplyDeleteDaisy
something quite strange...I guess!!! Hang in, em, and take good care. I hope you all will be back on Eugene soil soon.
ReplyDeleteXOXO Kathy
Hey Emily!!
ReplyDeleteStill getting caught up on everything!!! I'm so happy for you!
Talana
I can't believe it's been 3 months. Hurry up and come home. We all miss you. The Poodles are hoping you can make it to one of our summer gatherings.
ReplyDeleteLove, Colleen
Hey Em,
ReplyDeleteI've never hoped that someone had a cold in a *positive* way before, so thanks for that unique experience ;)
I keep seeing blond girls jump out of jeeps near campus and thinking they're you - may it become a reality soon! =)
Anna
Hi there! Talana pointed me your way. Apparently we all went to camp together way back when! Congrats on the new set of lungs, I can't wait to catch up on your whole story!
ReplyDeleteOk, I am all caught up! I think my eyes are about to fall out of my head! Haha. I am very happy for you! I started at the beginning and let a little squeel when I read that you had your transplant at UW. I live in Everett, about 30 minutes north of Seattle. So when the cafeteria and surgery pavilion were mentioned I could just picture you there! If you ever need to any advice on Seattle-ish stuff to do when you come up for appointments let me know!
ReplyDeleteHi Emily - Well Mac tells me you actually got to go home, finally! Yahoo! I bet Eugene has never looked better. I hope you'll keep the Blog going for awhile and keep us in the loop. You are an inspiration to us all. It's such awesome weather, I hope Keith will take you out on the river or something fun in the sun.
ReplyDeleteLove,
Duane and Funk Family
Dear Emily and Family,
ReplyDeleteI don't know what combination of mouse clicks brought me to your blog...I tend to blog hop and lose track of where I've been. I have spent the better part of the evening reading nearly every word of your blog (and most of the comments, too). I am shaking my head in wonder at it all, and trying to figure out exactly emotion fits what I'm feeling.
I am mom to another Emily. She is three and a half, petite, blond, a real firecracker, and she has CF.
I can not help but project my family into your family's place when I read these powerful, moving and funny posts. I am filled with disbelief, denial, some small amount of anger, fear, and mostly hope. The first four, of course, are directed at CF. The last, is thanks to stories like yours.
At 3 years old, Emily is giving us a run for our money. Her health is excellent, except for some slight sinus issues (first sinus surgery coming up in a few weeks). But behavior wise, well, CF seems to stand for "Constantly Fighting" in our house some days. SHe is a spit-fire! I wonder if I"ll make it to her teenage years, some days.
Reading your story tonight was a very needed reminder that my Emily was given the drive to fight for a damn good reason. Her stubborness may some day compel her to walk herself to radiology when everyone else wants her in a wheelchair. Her spark may allow her to live through what you've lived through so beautifuly.
So, I thank you for your blog. I can imagine that if your mom had had a blog like yours to read when you were three she'd have been rivited, too. I'll be back to check in on you, and you'll be in my thoughts.
Thanks for a great read!
Tami
mom to Emily
tdraxler@yahoo.com