Thursday, September 29, 2016

Today is Emily's Birthday !

    This is the birthday time of year at our house Peg's on Tuesday and Emily's today. Since we had not planned on being in Seattle we are a bit short on birthday cakes and cards but  are still having fun talking about birthdays past and plans for future ones. There is one big present today: Emily is being discharged from UWMC this afternoon. This is a good thing. On Wednesday Emily had a small capsule placed in hers esophagus to measure the acid levels from reflux. The data is sent to a small recording device worn around the neck. This goes on for 48 hours. The data will then help make the decision about a major surgery  possibly next Tuesday. This would basically redo the opening into the stomach to limit reflux. It's a pretty big deal. This is to hopefully reduce damage by reflux to the lungs. A major consideration is that she is considered a high risk candidate for surgery because of decreased lung function.  Each time under is a worry. Yesterday's procedure also required full anesthesia but was for a very short time. It took her most of the day to fully wake as some of the post surgery anti nausea meds really made her sleepy.

    We will remain in Seattle til the test is finished on Friday. We will stay here in anticipation of the surgery on Tuesday.  Hopefully the hospital stay has calmed things down and Emily can rest and gain strength for the next step.

Hello to all from us three.

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