Hello All ,this is posted by Keith, Emily's dad. Well, it has been well over seven years since I posted on the blog. That's been a good thing as there have a lot of healthy days but with the serious decline in lung function these past weeks Emily decided to reactivate the blog to keep folks up to date.
Today, Tuesday the 30th of august was sinus surgery day. Yesterday actually as it is now 2:30 am Wednesday. The goal was to clean out the sinus cavities and open up larger passages so the too thick CF mucous can drain away better. A major procedure but meant to be an out patient stay. The surgery itself went very well and a lot of nasty stuff was cleaned out and airways were opened. This is a very common surgery for CFers. But out jumps the devil and Emily has had a tough recovery and has been admitted to UWMC for the night. She experienced very bad pain that was tough to control and lots of puking caused by blood draining into her gut from the surgery. This went on for quite a few hours and an awful lot of blood came up. After many tries of different meds the pain and nausea were pretty well controlled about 10 last night.....the surgery had ended about 3 so that was a long haul. It is pretty complicated for her as there are many of the good pain meds that she can not tolerate. Or they control pain but cause nausea, that would be morphine tonight but not in the past. Some good work by the medical team has gotten things under control and she is getting some hard earned and well deserved rest. Before sleeping she did an excellent walk around the floor and was able to eat a little jello. Big deal since last intake was 24+ hours ago. The really good news is that she can breathe through her nose for the first time in forever. That was one of the goals and is wonderful.
So I think the day is ending very well. The hope is that the surgery will help with the lung function issues. Hopefully discharge will be tomorrow and perhaps home to Eugene on Thursday. That would be sweet after being up here since last Tuesday and having some medical activity every day except Sunday. Emily was in good form as she went to sleep saying that at moments like this she still thinks that as crappy as it is to have a disease like CF she is fortunate to have the extra ordinary care she gets, have her family for support and her community around her.
Thanks for following on the blog or Facebook. Please comment and stay in touch. Being back up here reminds me of how lonely it can be when dealing with chronic health problems. It takes you away from home, your regular life and is very isolating. Any hello, no matter how brief is welcome and appreciated.
Ah Keith, your posting brings back old memories of walking those halls and curling up on waiting area couches. So sorry to hear Em had such a rough time getting the right meds yet hopefully now you can each get some much needed and deserved sleep.
ReplyDeleteAll here at home is well. Gus and I have a nice routine in the evenings. A bit of ball throwing, some cool down time, dinner, then the walk. We both settled down quite soon after the walk. I did do a bit of a dog combing yesterday and found about 3 other dogs under his coat. Holy Moly that guy has got some hair! I'm not a great care taker as all that hair is up by the trailer waiting for the birds to snatch it.....wrong time of year??
I hold each of you in my heart. Gentle hugs all around. Hope you can make it home soon.
Gus is like the hairiest best lay ever. I have often though I could spin his fur into golden wool...Thank you for being there with him!!
DeleteKeith, I've followed Emily's posts on face book for years and I've loved her sassy view! I told Peg last week she inspires me to be a stronger human. Your family is in my thoughts daily! Stephanie Hine
ReplyDeleteHi Monfort family! I am following along and thinking of you all often. Emily you are amazing and funny and beautiful!! Keith and Peg you are wonderful parents! Please keep us posted. Missing you all!! Xoxoxo
ReplyDeleteKeith, Peg, and Emily,
ReplyDeleteYou are such an amazing family!
25+ years ago I admired all of your strength and tenacity. The admiration has grown stronger through the years!
Hugs to you all!
Keith, Peg, and Emily,
ReplyDeleteYou are such an amazing family!
25+ years ago I admired all of your strength and tenacity. The admiration has grown stronger through the years!
Hugs to you all!
Hang in there guys. We love you.
ReplyDeleteWickhams
Dear Monforts,
ReplyDeleteApparently Em comes by her writing skills honestly . Thanks for the very comprehensive explanation of what's been happening in Seattle. So good to hear about the surgery's poitive outcome albeit not without a few trials along the way. This latest crisis of Em's is a good reminder of how wonderful it is to breathe through my nose. ( and other things we take for granted...). I fell asleep last night with thoughts of you all riding on every inhale/ exhale. Safe and soon travels home . Love , Joan
Em, Keith, and Peg, thinking of you often and glad to hear breathing through the nose has returned to Em! I hope you are homeward bound today and after that, everything settles and routines return. Love, cuz Kathy
ReplyDeleteWe are so glad to hear that you are breathing better!! You're in our thoughts daily. Looking forward to seeing all of you in person. Keep up the good work!. Love to all of you.
ReplyDeleteGrateful for all the Montfort communication. I support all the beautiful things that have been said here and on FB. I can't say it any better. Love you all and glad the crisis is winding down. And Emily is doing better.
ReplyDelete