Tuesday, March 17, 2009

Soccer players, antenna's, and a rotating restaurant

So yesterday was my one month anniversary for transplant!! I had the usual round of clinic appointments yesterday, which makes for a very long day, so we decided to celebrate tonight when we were all feeling rested and up to going out.
All the appointments and tests went very well, I am continuing to heal and progress right on track. The cultures for the mystery blisters came back.....and they cultured nothing. That is good in that they are not fungal, bacterial, or viral, but it is also kind of frustrating because now they are even more mysterious in that no one has any idea of why, or where they came from. They have just been deemed "minor ulcerations." The important thing is that they are healing up nicely, getting a little smaller everyday and beginning to scab over. The minor infection I had going on in my new lower right lobe is cleared up as well, and all of my labs came back normal.
So, lots of reasons for celebrating, (not to mention that it is also St. Patrick's Day, one of my favorite holidays, being that I am half Irish and my favorite color is green). So we went to dinner at the top of the Space Needle (thank you Joan), combining our evening of celebration with a required tourist experience. 
The food was awesome, some of the best seafood and steak I have ever tasted. I had a little trouble when we first got up there, seeing that I am still on morphine and my world is already always spinning, being over 500ft. in the air in a rotating restaurant did not do much to improve my equilibrium. Fortunately my stomach settled after a bit and I was able to thoroughly enjoy my meal.
I mentioned my new fascination with ice cream in the last post, and now I am discovering that I am just fascinated with food in general. I have not really had an appetite for the past five years, and now being able to breath and starting to exercise again, I have finally got my appetite back and I now understand why gluttony is one of the seven deadly sins. (But since I need to gain about 20lbs. I am not worried about overeating at this point.)
(Another thought on that, I think I am the only 25 year old woman that I know who is trying to GAIN 20lbs. and is drinking weight gain shakes, instead of weight loss shakes.)
The view of course was amazing from the top of the Space Needle, and we were able to find our apartment building, which was cool in a dorky sort of tourist way. I have to say though, the highlight of the evening was that the newly founded pro soccer team of Seattle was having a special dinner at the top of the Needle tonight, and the entire soccer team was in the lobby when we got there. Talk about eye candy!!!!
One of the players went to my high school (yes Jean, that would be Nate), and my dad kept trying to get me to go talk to him. Even though we went to the same high school, I don't actually know him, and having gone through a fairly recent, rather traumatic and prolonged break up, and massive surgery, (not to mention that I have total morphine brain), I have not exactly gotten my mojo back. And waltzing up to a pro athlete in front of news cameras and saying "hi, we went to high school together" was not something I felt inclined to do. I was also wearing a tutu and St. Patrick's Day themed antennae, and although I was having fun in that outfit, I was not in uber-sexy-hit-on-the-hot-soccer-players mode.
(Just for the record, it was a stylish, big girl tutu from Jcrew, not some pooffy ballerina thing.) 
Anyways, we had a very lovely evening, both Keith and Peg got tipsy off of one glass of wine while I was stuck drinking a Shirley Temple. Because again, I am still on morphine and mixing alcohol and narcotics is generally not a good idea.
Even with all the good food, hot soccer players, holiday, and celebrating, I think my favorite part of the day was going to the gym. To even think about going to the gym and working out is amazing in and of itself. I can't tell you how long it has been since trying to get some excercise was not a matter of trying to stay alive and ward off the progression of my disease, versus something to go do to stay in shape and prolong my life and health in a normal way. Nobody really likes going to the gym even when they are in peak condition, but there are plenty of other physical activities out there that you actually get excited about doing. For the past 7 years I have put a smile on my face, popped a vicodin, and sucked up the pain in order to be out in the world doing the things I love, even though my lungs and body were screaming for me to stop because they had to work so hard to get me down a river, up that rock, down that slope, or up that hill. Just laughing was painful because all the muscles that had to contract over and over again with all of the coughing would also contract when laughing, and instead of enjoying a good laugh I would start coughing so hard that I would almost pee myself and/or throw up. Now I can go to the gym and actually do an effective work out and not cough once!! My body hurts because it is recovering from surgery and I have lost all my muscle mass and I am totally out of shape, but it is now a good kind of hurt as I recover and get my strength back. 
More and more through this experience I am discovering how important it is to take pleasure in the simple things in life. A good meal, a restful uninterrupted sleep, a vigorous long walk that reminds you of what it is to just be alive and breathing deeply.

13 comments:

  1. Happy Anniversary!! One month already, how awesome. You continue to amaze me--in the gym already? Are your docs cool with that? Sounds crazy 30 days after a double lung transplant, but YOU GO GIRL!!
    All labs are normal, how long has it been since you've heard that? No infections, no cough, no stopping you now. I'm curious to find out what the first thing you're going to do when you get home, what amazing adventure you're going to take your new lungs on.
    Give it time, the mojo will return! Then watch out male population! Emily's back and ready to rumble!!! Your soulmate is waiting for you, somewhere, and now you can travel the world to find him. How exciting for you!
    Glad to hear your finding pleasure in eating, Peg's gonna have to sharpen her cooking skills now that you have an appetite! It's refreshing to hear you enjoying the simple pleasures in life that most of us take for granted. My next meal will be eaten slowly, appreciatively, and with thoughts of you, realizing what pleasure a good meal can bring to one's psyche.
    Stay healthy and happy and remember you are loved!!
    Nita

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  2. Awesome to hear that you are doing ordinary things unencumbered by the #@*! cough. Do enjoy the pleasures of gaining weight--much more fun than taking it off. It is most satisfying to send you wishes of taking pleasure in your brand-new life. Love you, Kathy

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  3. I can't believe it's already been a month. Wow, time has flown. Congratulations of the completion of a successful month!

    Your story about the soccer players made me CRACK UP! I have to stop reading these at work, my coworkers are going to think I am either taking mood enhancers or have turrets.

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  4. Hey Em,
    Congradts on one month from surgery. Awesome!
    We sure enjoyed your story about going to the Space Needle and glad you all got to have a wonderful evening there. It's one of our favaorite places. Your appreciation of living and breathing is an inspiration! Cheers!
    Dave & Kelly

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  5. Hi Emily,
    Congratulations on your first months anniversary! I am so happy to hear you are doing so well. The soccer team and puking stories have cracked me up; you sound so happy I can't help but smile through every post.
    Take care of yourself!
    love,
    Michelle (Corona - I guess I should specify since there are a few of us!)

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  6. CONGRATUALTIONS!!! I can't believe it has already been 1 month. You sound so good, so full of life, and it sounds like your also full of lots of good food. I hope you got my post cards. We are back in Eugene. Keep getting better and enjoying working out.
    Love to all of you, Colleen

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  7. Hello Beautiful!!
    I am so happy to see that you are recovering so well and most importantly, you are happy and loving life!!!
    I can't wait to see you!
    By the way, if you ever eat at Cheesecake Factory I reccomend the Godiva Chocolate cheese cake...............it's AMAZING! I wish I could eat it every day. Unfortunately I am among those women who try to avoid weight gain so a few bites every so often is sufficiant!
    Give Keith and Peg my love.
    Love you!

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  8. I'm new to blogs and it seems like sometimes my comments don't get posted so if this is a repeat, oh well.

    I just think this would make such a great story for a book - and then a movie. I just wonder who you think should play you? Maybe Scarlet Johannson? I don't know - what do you think? You have a great story to tell and I think you should consider sharing it with others. I hope there is a happy ending (think romantic comedy with Matthew McCanaughay). Best wishes to you and your family. Keep enjoying the food and sights in Seattle.
    Cheers and Happy first day of Spring!

    Miriam

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  9. Emily,

    I hope this works, I have never posted to a blog before. This is Stuart Nurre (your old A&P teacher). I wanted to let you know, Pat at Pneu-Med told me you got a lung transplant. She also gave me the web site. I wanted to tell you how excited I was to hear you got your new lungs. I dont know exactly how you feel but being an RT I have a good idea of what it must be like to now be able to breathe without thinking of your every breath. And to not get into coughing jags that seem like they just wont stop. You seem to always be on some trip exploring many things, I hope you are now able to continue that and live every day to its fullest. You have been truly blessed. I wish you many many years of good health and happiness. All my best

    stuart

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  10. I'm so excited and happy for you Emily. Keep up the activity, pleasurable eating experiences, and flirtations with teams of soccer players... I'm sure that boosts your endorphins and will help you heal faster! :-) You're in my thoughts from the rivers of California.

    PS. Kayla is at Phantom Ranch today! I talked to her via satellite and she sends her well wishes. She says its been totally beautiful down there... I'm sure you'll be back soon..

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  11. Hey Emily

    I haven't check in in a few weeks. It is wonderful to read about how much progress you've made. The gym and soccer players will follow.

    Erik

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  12. HI Emily, great do hear how well you are doing.
    I check your site alot, and look forward to every update. Central Oregon is a great place to visit and get exercise. We have a guest house when you feel up to traveling, give us a buzz.
    Jack and Ellen Reynolds

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  13. Hey EM!!!

    Watzzup, as Gord would say. It's not a question, but more of a mere sign of 15yr old coolness. We all send our love and can't wait for an update! Did you get a picture with the silly deely-boppers in the space needle? Will, the boys and I went to the top a few years ago and the Blue Angels happened to buzz by... soo cool. Ok, on with more questions...
    1. Are the blisters gone? What the heck were they?
    2.What's your 2nd favorite color (between bright blue and bright red?)
    3. Have you been to YOGA?
    4. I'm such a germ-a-phobe, do you wear a surgical mask anywhere or freak in a public bathroom?
    5. (From the boys especially!) HOW IS GUSTER? / HAS HE VISITED YOU UP THERE?
    6. You said you've been workin' the milkshakes, have you been able to pack some muscle on that pritty lil' body? You look FANTASTIC in the photos...we'd love to see some more of your shiney happy smile!
    7.THANK YOU SO MUCH for the fluffy white hoodie (and all the other stuff you sent me!) believe it or not, it's been great for the cold nights at the Lacrosse games of Gord's.
    MISS YOU SO MUCH~~~BIG LOVE TO YOU & PEG & KEITH & GUS!!!XOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOXOO
    jules,will,gordie & jack

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